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May 20, 2025

May Is ALS Awareness Month: When Head Control Restores Hope

Head control supports ALS patients

May is ALS Awareness Month worldwide - a month of action that focuses on a disease that fundamentally changes lives: Amyotrophic lateral sclerosis (ALS). What often begins with minor muscle weakness gradually leads to loss of mobility.

But in the midst of this challenge, there is hope: assistive technologies such as head control open up new paths towards self-determination and quality of life for people with ALS.

ALS - when the body no longer obeys

ALS is a neurodegenerative disease in which nerve cells responsible for our movements die off. The muscles gradually lose their strength. Arms, legs, speech and breathing are affected - while the mind, thinking and perception remain fully intact.

This constellation is particularly stressful for those affected: they consciously experience how their body loses its function - without any mental restrictions. Everyday life becomes a daily challenge.

Everyday life with ALS: when movement becomes an obstacle

“I can think, feel and perceive like I used to - only my body no longer cooperates.” This is how many sufferers describe their experience. Everyday life with ALS means adapting every day: What was possible yesterday can become an insurmountable hurdle today. Simple actions such as steering a wheelchair, typing a message or answering a phone call - all of these gradually become impossible.

It is precisely at this stage that aids are crucial. Not just as technical support - but as the key to self-determination. And this is where head control technology comes in.

Head control: when small movements make a big difference

People with ALS often retain the ability to move their head - even if their hands and arms are already too weak. It is precisely this ability that munevo DRIVE utilizes: our smart data glasses transform head movements into precise control commands for the electric wheelchair - without the need for hands, joysticks or physical strength.

The advantages at a glance:

  • More freedom: change rooms independently, go outside, roll to the fridge - without help
  • More dignity: Decide for yourself when and where to go
  • Better quality of life: stay active and help shape everyday life again
  • Less stress for relatives: More independence creates relief for everyone involved

Head control bridges precisely the critical phase when the hands and arms become too weak for conventional controls, but head control still functions reliably.

Why ALS Awareness Month is so important

ALS Awareness Month takes place every year in May and draws worldwide attention to a disease that profoundly changes the lives of those affected and their families - and yet is often barely noticed by the public. There is still no cure for ALS. This makes it all the more important to raise awareness - in society, in research and in politics.what ALS Awareness Month is really about:

  • Looking where people usually look away
  • Listening to what those affected really need
  • Understanding what it means when your own body no longer cooperates
  • And supporting them to find real solutions

It's not just about medical education - it's also about visibility, participation and real life prospects. The more people talk about ALS, the greater the pressure to invest in research, care and aids. At the same time, the month provides encouragement - through testimonials, campaigns and innovative technologies such as munevo's head control, which gives those affected a bit of freedom again.

Working together for a better quality of life with ALS

A diagnosis of ALS changes everything - but it does not mean the end of a self-determined life. With innovative technology such as munevo's head control system, people with ALS can regain mobility, freedom and self-confidence.

At munevo, we work passionately every day to further develop our technology - for a better quality of life, more dignity and more options in everyday life.